About AT/RT

Vampboy was diagnosed with an Atypical Teratoid Rhabdoid Tumor of the Brain on Father’s Day, 2006. AT/RT tumors are extremely rare and incredibly difficult to treat. AT/RT strikes children, normally under the age of three.

Please see below an opportunity to support the important research that is underway to improve treatment and outcomes for AT/RT children. Dr. Chi is Vampboy’s Oncologist at Dana Farber.

Trust me…It’s worth every penny to ensure that another family doesn’t go through what we did.

Dear Friends,

While more children have survived Atypical Teratoid Rhabdoid Tumor in the last five years as compared to pre-2002, this disease remains a tremendous challenge for our families and oncologists. Much has been learned about the underlying cause of ATRT; the genetic mutations involved have been identified. But the overall survival from this deadly cancer remains low, too low.

The small number of children diagnosed yearly around the world make it difficult for doctors to conclude definitively which portions of treatment actually work. Like other cancers, it will be through scientific breakthroughs from research laboratories that will lead to new treatment approaches. Only through collaborations between the laboratory scientists and the clinical doctors can we learn from each, leading sooner to a cure.

In March of 2009, the team at Dana-Farber Cancer Institute, in collaboration with their European colleagues, along with their laboratory counterparts, will be hosting an international joint consensus meeting, “CNS Rhabdoid Tumors: Integrating Biologic Insights with Clinical Success”, to exchange ideas and the latest information on this tumor, working towards understanding, building and planning future therapy strategies. We hope that you will join us by donating to their effort as they work towards a cure for this devastating tumor that has affected us in so many ways.

Please make your contributions to:

“Cure ATRT Now” Fund
c/o Dr. Susan Chi
Pediatric Neuro-Oncology
Dana-Farber Cancer Institute
44 Binney Street SW331
Boston, MA 02118

Thank you all for supporting this very important endeavor and making a difference in our children’s lives.


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