Her name is Charlotte O’Shea — and a year ago, she was the smiling girl, sitting with VB in his pirate pool on a beautiful summer day.
She was the first other child we met who had ATRT, shortly after VB was diagnosed. We spent the better part of a year and a half in the battle side by side with her and her family. Then, a week before her treatment was to end, an MRI came back showing she had relapsed. It has been a long journey for Charlotte, her parents, her siblings, her community. I have often thought of them, as we have fought to return to some semblance of the life we had planned, knowing that for them the battle continued without abating.
Charlotte left this earth in the early hours of this morning. She was 6 years old, she loved the color pink, and puppies.
Charlotte’s family are members of our Cure ATRT NOW Team for the Jimmy Fund Walk — anyone wishing to honor Charlotte and her family can make a donation through my walk page, which remains active until the end of the year. Remember, the money we raise goes to research ways to improve treatment for this disease. Or, you can make a donation to:
“Charlotte O’Shea Scholarship Fund”
c/o The Bromfield School
14 Massachusetts Avenue
Harvard, MA 01451