His name is Declan Carmical and, like my son, was diagnosed with ATRT.
Last night he sighed his final breath and left this earth for places unknown, leaving behind a grieving family and community. He was just shy of his 1st birthday.
I add his name to the list that is carved in my spirit — another life lost. Another reminder of how lucky we are to have had our story turn out as it has — even though we cannot guarantee our final chapter is written.
I know too many names. Yet, it is in those names we find the cause that keeps us moving.
In his name, and far too many others — please feel free to give.