Let’s review the day, “Twitter Style”. It seems like our world is moving in the direction of 140-character communication anyway!
6:45 a.m. – As VB descends staircase with doll in tow; “I’ll bring baby so we can cuddle while I’m in EMMMM ARRRRR EIYYYYYYY.”
8:00 a.m. – Why is it that our local AM news station is flooding with cancer-related advertising?
8:45 a.m. – There’s an MRI machine out of commission. Might as well settle in for a long morning.
9:00 a.m. – ABC is in the hospital doing a documentary. I’ve always wanted to be interviewed by Barbara Walters.
9:30 a.m. – VB says, as the “Access Team” succeeds in putting in an IV line, “Thanks for cooperating, vein”!
10:00 a.m. – Download our frustration and ennui on the poor Jimmy Fund Walk rep who meets up with us for a debrief of our experience walking last year. She “takes it in stride”. Ha ha.
10:30 a.m. – It’s go time. A little magic juice and VB is off to sleepy-land.
10:45 a.m. – Spontaneous visit with E and her mom, who we haven’t seen in awhile. E has hair!
11:30 a.m. – I can tell that’s VB being rolled by in the bed by the quilt we brought with us. Off to recovery.
11:35 p.m. – Scrubs calls… Scan is unchanged. VERY good news.
12:30 p.m. – VB is up, finally. He’s doing his best “drunk kid eating crackers” impression.
1:20 p.m. – Out of recovery, now on to Neurology appointment, 20 minutes late. Which floor is it on?
1:45 p.m. – “Demyelination” is not the appropriate word. The more accurate phrase for our new friend is “Treatment-Related Brain Injury.” Still in the realm of “to be expected” and in the grand scheme of things not a big deal.
2:30 p.m. – I’m so hungry I could cannibalize the next Resident that walks by. Down to the Chez Healing Cafeteria, STAT!
3:00 p.m. – I can’t remember the last time I ate pudding.
3:40 p.m. – Run over to Dana Farber to check on progress with the new building. VB’s name now hidden behind drop cloths.
4:00 p.m. – Yippee, Friday evening commute traffic!
4:30 p.m. – Scrubs calls with full report and next steps. Everyone is happy with the MRI, although a brief glimpse of VB’s liver shows a small spot. Probably nothing — it’s amazing how many spots and weird enhancements even completely healthy people would have on an MRI. However, the “joy” of being in VB’s situation is that they follow everything with the psychotic focus of someone with OCD. The plan: Ultrasound of liver to confirm over-reaction, followed by next MRI in May. Another day in Survivorship-land.
5:00 p.m. – After being confined in the car for the day, we let Vampdoggy and Vamppuppy take out some energy at the dog park. VB can’t go in the park, but enjoys running along the fence shouting at the dogs.
6:00 p.m. – Home at last — leftover pizza for dinner.
7:00 p.m. – Clearly the drunken toddler effect has worn off, as VB has returning to yelling loudly as he pretends to ice skate around his room.
8:59 p.m. – Feeling grateful for a good result today, glad to post good news, and guilty for not posting more often like I set out to do earlier in the year. Too tired to go deeper.